Saturday, February 2, 2013

Recovering Little Pumpkin

Our little pumpkin is finally recovering nicely.  Three doctors' appointments later this is what we think happened.

The new mayo (with soybean oil) caused a more mild allergic reaction (meaning he wasn't vomiting uncontrollably this time) to soy and since he didn't expel it from his body wreaked havoc on his digestive system causing major constipation, straining, and lots of leaking gastric fluid which destroyed the beautifully closing tube site.  But, a week and a half and three enemas later James is finally pooping on his own and eating better.  He isn't up to speed yet, but he is definitely gaining back some weight.

GI wants to do surgery to close the hole but our pediatrician wants to wait a bit.  I would rather wait so we will talk to GI at our follow up and decide where to go from here.  We are lathering the area with neosporin and maalox to neutralize the acid and that seems to be helping.  At least he is much more comfortable.

We'll keep working!


On one of his hardest days I went in the other room to check emails while James quietly played.  This is how I found him.  It was 9AM and he had only been awake for two hours tops.  Poor little guy.


As he is starting to recover, sitting is getting more comfortable and he is back to his normal self.  He likes to rock out and make faces at himself in the mirror.



With love.

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