We were snowed out of 4 of our 5 appointments on Friday which was really disappointing. James finally took a good nap, ate a good meal, and pooped Thursday afternoon so I hoped Friday would be promising. We are trying to decide whether to keep going with the program or stop here and try again in a few months. James is determined to do everything on his own time and it is clear he will not reach the goals we set. We are trying to be content with the progress made. We have moved from pureed to mashed food and he is able to spoon-feed as long as we fill the spoon, although sometimes he misses his mouth! :D
I appreciate that his therapists constantly remind us how low his muscle tone is and, consequently, how difficult normal tasks are to accomplish. He really need more core strength before he can really progress.