 |
| So worn out after therapy on Thursday. This week was just rough! After two days at the hospital with unsuccessful meals (he threw fits through them) I was about ready to give up. We were snowed in at the hospital last night and James and I had a snuggly snack before bed. He ate really well, sitting in the chair with me, and we even took some "pirate" bites (thanks, Aunt Lily!) on his fruit chew. He took a big bite out of a chocolate "brownie", but freaked out and didn't know what to do with it. He was able to spit it into my hand which is exactly what we wanted him to do. He needs to feel comfortable with food and knowing that he can spit something out is an important part of that. |
We were snowed out of 4 of our 5 appointments on Friday which was really disappointing. James finally took a good nap, ate a good meal, and pooped Thursday afternoon so I hoped Friday would be promising. We are trying to decide whether to keep going with the program or stop here and try again in a few months. James is determined to do everything on his own time and it is clear he will not reach the goals we set. We are trying to be content with the progress made. We have moved from pureed to mashed food and he is able to spoon-feed as long as we fill the spoon, although sometimes he misses his mouth! :D
I appreciate that his therapists constantly remind us how low his muscle tone is and, consequently, how difficult normal tasks are to accomplish. He really need more core strength before he can really progress.
 |
| Working on core strength. |
 |
| Swimming during the snow! |
With love.
