Monday, October 7, 2013

Falling Hard

September has been a flurry of activity, so many doctor's appointments and therapy sessions!  His genetics appointment went well, nothing new from cardiology, and we are waiting for James' orthotics to be created.  We opted out of county speech therapy (will write about that separately) and will start educational therapy through the county instead.

I hope October will be slightly calmer (or that the activity will be more fun).  James has been working hard to strengthen his leg muscles and stands (with the help/force of the stander) at least 30 minutes each day.  We are beginning to see some real progress.  We are going back to see James' feeding specialist/speech therapist/cranial sacral extraordinaire this month and are so excited.  She is the only person that has gotten results (and James has worked with 5 other speech therapists) and we hope she can help us climb the brick wall we have hit.  James eats well, but we can't seem to move into the chewing stage.  He is starting to learn the concept, but is very averse to it.

With the stress of stalled feeding development and attempting to teach our son to stand, in addition to the awfully slow arrival of two year old molars and the awfully fast arrival of cold season, we have struggled to keep positive.  We had a couple weeks where we just didn't know how to handle this state of perpetual infancy.  Luckily, we've taken a weekend or two to step back, take a break, and relax from the chaos.  With rest, prayer, and encouragement we made it through the worst weeks.  I appreciate our family that pushes us to keep going.  It is easy to get bogged down in the day-to-day and not always easy to remember all the good progress James has made.  I can't believe that this time last year James was on his feeding tube with no real thought of weaning him off.  That is enough to make me thankful for where we are.

Now that we have picked ourselves back up we are ready to enjoy the Fall.  :D  James and I had a chance to go to Aunt Melanie's soccer game last weekend.  James loves watching soccer and he enjoyed sitting on our picnic blanket, crawling around the grass after his ball, and watching (or chasing) "Referee Rich" (aka Granddad).  I think he paid more attention to what my dad was doing than what was going on in the game.





With love.

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